My family needs your help.
I am a disabled single-parent with severely handicapped child...
We need your help.
We both have muscular dystrophy.
We need funds for repairs to a wheelchair adapted vehicle.
We need assistance with other needs as well.
We will accept your assistance with vehicle repairs as well as other contributions.
Will accept donations of clothing and other things including gift cards.
I worked hard all my life and after slowly losing my abilities, at 38 yrs old
I have been diagnosed as a manifesting carrier of Muscular dystrophy.
My child has Beckers form of Muscular dystrophy, autism, developmental
delays and other health problems.
I did my best - I tried. I went back to school to upgrade and I took
out huge student loans to take an office clerical program to
be able to work at a less strenuous job.
I could not complete the program due to becoming further disabled.
I cannot work and provide for my family because of this disorder.
My son is slowly loosing his mobility and he may not live past 30.
I am loosing my mobility as well and my life span is also shortened...
I will probably not live past 50.
We both have many health problems associated with this disorder.
To live on the minimal amount given each month for disability that the government
of Alberta issues for both my child and my self is nearly impossible.
We are lucky enough to have a subsidised rental unit of handicapped housing
& not be out living the streets like so many hundreds of others.
We count our blessings - But still...
After the rent, utilities and food is paid for there is nothing left for clothing,
non- covered medications, non-covered medical treatments, transportation & other minimal basic needs of life...
Thus my plea for help...
With the current Alberta Government it is impossible for those of us with
disabilities or on any form of assistance to survive with a decent quality of life.
The income amounts issued for disabled persons simply are not enough to
cover all the minimal needs we have.
In all this prosperity - the disabled do not have enough for the basic necessities
of life. Nor for any quality of life - we just merely exist.
The internet is a lifeline to the disabled who are housebound.
Thats an example of a quality of life item...
Same with cable & recreational activities...
Sitting around waiting to die isn't quality of life.
Watching the paint peel & staring at 4 walls is not living...
Many of us don't have internet or cable or other because we have to pay for
hundreds of dollars worth of medical treatments, dental care & medications
that are not covered.
You would be surprised as to what is NOT COVERED. Its scary...
Getting a wheelchair repaired is a luxury -
So is having proper physio & other medical treatments
so we can have more mobility & be free of pain are also a luxury.
Alberta's community pride would be best shown in the proper funding for
income programs for the disabled. It is simply revolting what disabled persons
& their families are expected to exist on.
For the grace of God go I...
I would not wish this illness or disability on anyone...
The amounts issued for AISH & Assured supports disability is a running joke.
Our provincial government has done a million dollar study outlining
what changes need to be done with rates for AISH & Assured Supports
Disability recipients.
Absolutely nothing has been done by Alberta's current government to fix this.
People cannot survive on the funds they are issued and it is getting worse.
Klein has ignored his own gov's studies crying for changes.
I get approx 8000 a year to try to exist on & that is for 2 persons.
An adult and a child both with muscular dystrophy.
I am greatful however, it is almost impossible to exist on that little.
Poverty line is at aprox $16,000.
I'd rather be working but I physically cannot due to circumstances beyond
my control.
I did not make my self get muscular dystrophy - it is a genetic disorder.
AISH & disability rates have been raised only $100 and before that
had not been raised for 25 years. Cost of living has gone up - but
not the disability income.
A raise of AISH & Assured supports disability benefits to the actual cost
of living is all I and other disabled persons are asking for.
$300-$500 a month more for a disabled person and something for each child...
Is that so much to ask for?
Adequete increases to AISH & Assured supports disability rates need to happen.
AISH & Assured supports disability needs to be raised to the actual cost of living.
But until that is done I am forced to go to the internet to put out a plea for help...
I am forced by the Alberta Government to literally beg for my family's survival
& mere existance.
I did work at one time - I did pay taxes at one time...
But due to circumstances beyond my control I have been forced to go on
disability to survive and support my family.
I have sold off everything I had of value trying to stay off
of assistance.
The only thing that I still own is a wheelchair adapted vehicle that needs repairs.
We are in great need of help at this time as are so many other disabled persons.
This vehicle is used to transport my child to the special needs school
programs, outreach programs to improve his quality of life & for
medical appointments for both of us for what little time we both have
left on this earth with this terminal disorder.
Without it we cannot go anywhere. Our independance is that vehicle...
That vehicle is my legs...
Dats isn't an option with an autistic child with muscular dystrophy
The program & the Edmonton transit system is not set up to deal with our circumstances. We used dats before & it was a nightmare.
As for buses -
You learn what pain is fast with the injuries and the disorder we have.
The jarring is injuring us - the jarring damages the muscles.
With muscular dystrophy the muscles do not heal and remain damaged.
We have already looked at our options.
That van is the only freedom we have left...
I need assistance to fund repairs & maintenance of this vehicle & help with
the vehicle insurance so that we may retain the few shreds of independant
living & dignity we have left...
Living with a terminal disorder is difficult enough...
The key word to this is *LIVING*... We need help to do that...
There are other things we need...
Food, Clothing and other basic necessities of life.
Tickets to events like a concert or other also are appreciated.
Those are things that would be enriching to our lives...
Having something to look forward to seeing - beats watching the paint peel... *Smile...*
Funds
are also needed for my son's future care in a facility that can manage
with
his disability as it progresses & worsens over time.
If anyone wants to donate their dividend cheque to a good cause - my son needs it.
The funds would be put into trust to be used for his permenant care in a facility that can manage his
needs as he progresses with the muscular dystrophy and deals with the autism as he gets older...
If you don't want to take the cheque - please consider donating it to a family in need.
Thank you...
What I am trying to do is to provide what I can for my son for what
little time we both have left in this world... My family needs your
help to get by...
We are living in absolute poverty created by our elected government.
Thank you.
Persons
on disability under the social assistance act are allowed to accept
gifts in kind with some limitations. All gifts are reported to my worker.
Cash gifts are limited to $900 a year and are reported to my worker.
Gifts can be sent through Paypal to donatetodisabledfamily@telus.net
Or sent through the Society of St Vincent de Paul - Edmonton.
Other gifts, donations of clothing, gift cards & other things can be arranged to
be dropped off or picked up. You can contact me by e-mail at donatetodisabledfamily@telus.net to arrange for pickup or to drop off of items.
Or send the items to the Society of St Vincent de Paul - St Charles Confrence.
If you have any questions - please e-mail me.
I have made arrangements for contributions to be accepted by the
Society of St Vincent de Paul on behalf of my family.
Please send/mail contributions to:
Kat
C/O
Society of St Vincent de Paul - St Charles Confrence
17653 - 112 Street Edmonton AB T5X 5Z2
Make cheques or money orders out to:
"Society of St Vincent de Paul - St Charles Confrence"
Please include a notation that says "Kat van repair" or "Trust for Kat's son" on it.
We need to know where it needs to go to.
You can also send gift cards for safeway, walmart, zellers et al.
Those will be gladly accepted and very appreciated as well.
Thank you...
I just wish the Klein gov would wake up & take care of our own
instead of allowing the BS that is happening in this province to
persons with disabilities with the inadequete AISH & disability
income rates.
The $400/ person rebate cheques from the surplus are a short term thing...
However, taking care of the disabled for the long term should come first...
Kleins legacy - letting the disabled of Alberta do without...
Now that is something to really be proud of...
We are in a province of plenty - but there is little to nothing for the disabled.
Alberta needs to take care of her own.
If the above button doesn't work click the paypal link and type in "donatetodisabledfamily@telus.net" to help my family.
Paypal.
Please remember I am a disabled individual, not an organization, therefore
donations or gifts are NOT tax-deductible, but considered as a gift in
kind.
All gifts in kind are reported.
I am honest & I am not out to use the system.
Thank you...
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